By Mats G. Hansson, Ulrik Kihlbom, Silke Schicktanz
This volume presents the ethical implications of risk information as related to genetics and other health data for policy decisions at clinical, research and societal levels.
Ethical, Social and Psychological Impacts of Genomic Risk Communication examines the introduction of new types of health risk information based on faster, cheaper and larger sets of genetic or genomic analysis. Synthesizing the results of a five-year interdisciplinary project, it explores the unsolved ethical and social questions around the sharing of this data, such as: What is best practice in risk communication? What are the normative presumptions and ethical consequences of an increased individual responsibility for ones’ health? And how does one deal with the gap between the knowledge of risk and the lack of therapeutic options which often exist for complex diseases, such as dementia or some types of cancer? Drawing on contributions from over 20 experts in the field, this collection examines these questions from a liberal bioethics’ perspective, advocating for contextual and cultural-sensitive ethical discussions.
This book will be of great interest to students and scholars of theoretical and clinical medical ethics, medical sociology, risk communication and ethics of risk, as well as professionals in clinical genetics.
Product Details
Publisher : Routledge
Publication date : May 30, 2022
Edition : 1st
Language : English
ISBN-10 : 0367627868
ISBN-13 : 978-0367627867
Part of series : Earthscan Risk in Society

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