The Private Life of the Genome (PDF)

The Private Life of the Genome (PDF)

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This book argues that genetic information cannot be completely private since it is linked to the genetic information of others. It proposes new ways of thinking about access to sensitive genetic data, which may challenge our intuitions about privacy and raise concerns about discrimination. It is a conceptually challenging read for scholars, students, and policy makers interested in bioethics and medical law. It is 212 pages long and will be published in May 2023 by Routledge.

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The Private Life of the Genome 

Genetic Information and the Right to Privacy

By Iain Brassington

This innovative and engaging book argues that because our genetic information is directly linked to the genetic information of others, it is impossible to assert a ‘right to privacy’ in the same way that we can in other areas of life.

This position throws up questions around access to sensitive data. It suggests that we may have to abandon certain intuitions about who may access our genetic information; and it raises concerns about discrimination against people with certain genetic characteristics. But the author asserts that regulating access to genetic information requires a more nuanced perspective that does not rely on the familiar language of rights. The book proposes new ways in which we may think about who has access to what genetic information, and on what basis they do so.

Conceptually challenging, the book will prove engaging reading for scholars and students interested in the area of bioethics and medical law, as well as policy makers working with these pressing issues.

Product Details

  • Publisher ‏ : ‎ Routledge; 1st edition (May 17, 2023)
  • Language ‏ : ‎ English
  • eBook Digital ‏ : ‎ 212 pages
  • ISBN-10 ‏ : ‎ 1032320443
  • ISBN-13 ‏ : ‎ 978-1032320441

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